The thing with watching our NKH Siblings keep on, determined little bees that they are, is that we can’t help but be proud of them. For fighting such an epic fight, for every milestone, for every moment, and for doing it with such strength. How could we not be proud as chips?
So we put it on a tee, so we could show everyone just how proud we are.
Nonketotic Hyperglycinemia (NKH) is a metabolic disorder in children which prevents their little bodies from processing glycine. In a typically severe case, it causes seizures, severe intellectual and physical developmental delay, disability and is terminal. As you’re on the foundationnkh.org website, feel free to take a look around. Plenty to learn about NKH.